Ellen Wright Clayton

Vanderbilt Law School

Ellen Wright Clayton is the Craig-Weaver Professor of Pediatrics, Professor of Health Policy, and Co-Founder of the Center for Biomedical Ethics and Society at Vanderbilt University Medical Center and Professor of Law in Vanderbilt’s Law School.  Informed by her twenty-year experience as a general pediatrician, she has focused for many years on ethical, legal, and social issues presented by conducting research, particularly in genetics and genomics and more recently in artificial intelligence and machine learning, and the impact of translating these advances in clinical care and the broader society.  She is particularly focused on issues of women’s and children’s health. Her work is truly transdisciplinary, combining empirical, normative, and legal analytic methods to address real-world challenges.  She is currently co-PI of VUMC’s highly transdisciplinary CEER on genomic privacy and identity, GetPreCiSe, and recently completed work as co-PI of LawSeqSM, which created in-depth analyses and made recommendations regarding several issues confronting genomics, including privacy.  She is an elected member of the National Academy of Medicine where she has held numerous leadership positions, mostly recently serving as a founding members on the Academies’ Standing Committee on Reproductive Health, Equity, and Society.

Presentation (PPTX format): Protecting Privacy of Pregnant Research Participants